As the world’s largest network of blood stem cell donor centers, DKMS has a special responsibility to protect the personal and especially sensitive medical data that registered donors entrust to us. We take data privacy very seriously. It goes without saying that we fully comply with the statutory requirements of the EU’s General Data Protection Regulation (GDPR), but we have also committed to an even higher level of data privacy.
Your personal details are only handled by DKMS and our appointed service providers. Our commissioned data processing (CDP) agreements with service providers ensure they are all committed to upholding our highest data privacy standards. The data relevant to the stem cell donor search, such as HLA tissue characteristics, age, and gender, is always pseudonymized before we send it to other German and international search registers, such as the German National Bone Marrow Donor Registry (ZKRD) and the National Marrow Donor Program in the US (NMDP). This means that doctor’s and transplant centres searching the database for a matching donor are only able to see this information and your personal information remains only with DKMS.